Posts Tagged → Family

It wasn’t a funeral technically we didn’t have a funeral it was an inurnment which I learned is different than an interment

Here are some words I did say at my father’s funeral:

…everything good that I am is thanks to you. I am living and pursuing happiness in a foreign land, a thing that I have always dreamed of doing and a thing in which I find exceptional value and strength. If I wouldn’t have had you, if I wouldn’t have had Mom, none of this would have been possible. If we are to count our blessings then this is the first and perhaps greatest of mine.

Yeah, it was a little sappy.

Neither of my brothers were particularly jazzed about the idea of saying something at Dad’s gravesite, so I had a little speech typed out and in my coat pocket. I won’t put all of it here on the blog, but the whole thing was about how ineffective words are at explaining loss.

The speech ended with me yelling, “Kakaw!” at all the nice folks at our small grave-side gathering. Sarah’s part was to reply by hollering, “Aye-aye-aye!” like a member of a mariachi band. (It made sense in context.)

Dad would’ve liked that.

They always had chicken tenders and they weren’t great but they were hot and ready when a lot of other things weren’t

When someone you love is slowly dying, one thing no one really tells you about is just how much goddamned sitting around you have to do. Something like 75% of the whole shebang is time spent just sitting in a chair in a little room with the people you care about waiting for something bad to happen.

The other 25% of it is, based on my experience, forgetting to eat and then running down to the hostpital cafeteria before it closes to see if there are any chicken tenders left.

Anywho, there were a bunch of times in that room when I’d look up as if suddenly coming awake and see that, of the six or seven people squeezed in to be at Dad’s bedside, all of us were looking at our phones. Everyone except Dad, of course, who was busy with other matters.

It was surreal and … kind of horrifying. A definite, “My God, what have we become?” sort of moment.

I’m not pointing fingers at anyone or blaming anybody or any of that jazz. It’s just that I’m a teacher and I spend a lot of my day fighting to keep people off their phones so they can get some work done. These days, I have a sort-of conditioned response to seeing a room full of lowered heads and a bunch of tiny, glowing rectangles. I see how f*ing insidious our cellular masters are. I get angry about it.

In that room with Dad, I’d purposefully put my phone away and just sit. Not the whole time, but every now and again, when the urge hit me. It wasn’t meditation, but something akin to it, when I’d pick a sound or something and try to focus on it and just … exist in that room. Sometimes I counted seconds, sometimes I counted breaths, sometimes I counted the number of times the IV Dad was hooked up to made its little pumping noise. (It had to pump 4,000 times to go through one bag of IV fluid.)

Was it worth doing? Trying to “be in the moment” rather than scrolling? F*ck, I don’t know. It was hard not to be nihilistic or fatalistic when Dad was dying right there, to say to myself, “What is the point of anything?” and then mindlessly swipe through TikTok or Reddit. Take comfort where you can find it, right?

There have definitely been times when I’ve thought that the sort of distractions phones can give was a comfort. A blessing, even.

But we all know better.

The New Normal and words that I probably won’t say at my father’s funeral

My dad died early in the morning on Wednesday, April 22nd, 2026.

What had started out as a trip to the E.R. for abdominal pain spiraled into more and more problems until, eventually, the cancer was just too much for his system.

It feels too personal to go into details, but my memory hasn’t been … working the way it should for the past few days. All of us were by Dad’s side right up until the end and everything has turned into this blur of nurses and doctors and hospice reps and phone calls and late-night drives and texts and chicken fingers from the hospital cafeteria and, at some point, my brain said, “You know what? I need a break. We’re going to shut down some non-essential functions.”

And so, my writing about all this is a way of helping my poor brain keep track of events.

(I can’t believe I’m still doing doodles for a post like this)

My brother has told me a couple times in the last few days that he doesn’t think it’s really “hit” him yet.

I’ve responded both times by asking, “How do you think it’ll ‘hit’ you? Like, what do you anticipate will happen when it does?” Because that’s what a therapist would ask — it’s a leading question to help you understand that you’re not tied to any tracks; there’s no steam train about to run you down. You’re having a trauma response that makes you feel like there’s an immanent threat, but really there isn’t.

(Today’s armchair psychologist’s report is brought to you by: Years and Years of Teaching Seminars!)

My brother says he doesn’t know what it’ll feel like when it hits. I think the whole “hitting” thing is a myth.

Or, I should say, I’m not as worried about getting hit as I am worried about “The New Normal.”

What I think happens when you go through a traumatic event like this is your brain slowly starts incorporating new, bad habits that result from the trauma and/or getting rid of good habits you may have once had. If you’re not careful, those temporary habits become actual full-time habits when maybe you don’t want them to and all those good habits you once had are gone forever.

Like, right now, there’s no way I’d be able to go out and do fun stuff. I absolutely don’t feel like it. If a friend called and asked, “Hey, do you want to play board games or go to a concert or see a movie?” I’d probably respond (internally) with, “No way! I’m too sad to do that. I want to stay home and watch A Relaxing Walk Across Skyrim and take a nap for the fourth time today.”

That’s a big, obvious example and I’m sure you think, “Oh, yeah, that makes sense, I can see that.” But how many tiny and seemingly-innocuous habits are there that I’m losing or gaining?

For example, at one point in the last week (although the specific day escapes me), I realized that I hadn’t brushed my teeth in two days. I had similar realizations at other times along the lines of, I haven’t had any food since breakfast yesterday. And When was the last time I showered? Christ. I don’t remember.

And mental habits! I don’t even know how many times I’ve told myself, “I am not going to think about that right now. I’m just not even going to consider that particular problem right f*cking now.” It could be a bill or an email I have to send or the question of what to with my father’s collection of erotic sculptures from across 6 continents. I will just shove it aside like a passenger on a Japanese train, without so much as a care, and continue on about the business of being miserable.

That’s what I think happens to you when someone you love dies; They leave a hole, and a big part of that hole are the habits — physical and mental — that keep you happy and healthy. Your sadness becomes a part of “The New Normal” and you’re left just being … worse.

Sigh. This is not at all what I intended to blog about when I started.

Whatever. I’m still here. Still typing.

I’m just saying that even if I donated the money don’t put my name on it bad stuff happens in there so just call it something else please

The city of Lincoln waits for you like a big red splotch, as if a great glob of glued-together Republicans fell from the sky and splattered over dozens of square miles of pasture at the heart of the Great Plains. They spread out, repopulated, all started building. First, ranch-style homes. Next, steak houses.

The fact that the University of Nebraska (arguably the most liberal spot in the state) is in Lincoln is only redeemed in the eyes of the citizenry by the Cornhuskers, the perennial disappointment of a football team with an inexplicably avid fan base.

In the far south of Lincoln is where you’ll find the April Sampson Cancer Center, which I can only describe as a cathedral to the gods of malignant tumors. It is massive and modern and all made of glass and marble. The foyer is tall. It looks like it was pulled out of a mega church, or maybe a bank, because right off to the side there are a bunch of partitioned desks where the administrative sides of things are handled. (That’s where they tell you your insurance doesn’t cover it. That’s where they tell you you’re bankrupt.)

There are a fleet of wheelchairs just inside the entrance and whole building is dedicated to cancer and, boy, do I hate it. I mean, I’m glad it’s here and I appreciate all the doctors and nurses and support staff. Everyone is so nice. They bake cookies every day and go around passing them out. There are player pianos and a cafe where the worker is quick to tell you about the free refills. There’s a whole path out back where you can walk around when the weather is nice. It has a water feature. It’s as pleasant of a “cancer building” as one could ask for. But I hate the fact that this building even exists.

I’m not a conspiracy theory sort of person, but there are a couple of things that I think are true:

  1. American car companies and the oil industry conspire and bribe the government to disincentivize small, cheap electric vehicles.
  2. There are people in the medical and insurance industries who would happily inject every American with poison if it meant they could squeeze another dollar out of one needy schmuck.  

I get the feeling that whoever built the April Sampson Cancer Center, whoever is profiting from it, considers the whole outside world to be one big waiting room and all of us peons are just cancer patients in the making. Waiting in the wings for our chance in the radioactive spotlight.

It’s pessimistic. Probably not the thing to focus on. Today, however, I am filled with dark images that occupy my mind like belligerent apartment tenants who refuse to vacate.

(When the pain got really bad, Dad’s hand seemed to rise up of its own accord. It hovered a few inches in the air. I recognized the motion. His fingers felt and fumbled with the hem of his shirt and then with the thin layer of tissue paper that covered the exam table. It was a restrained, delicate touch, but his hand didn’t find whatever it was looking for. Maybe a pocket, maybe a person, but nothing. Then his hand paused for a moment against his stomach and fell back down to the exam table, suddenly and quietly deflated.)

Blogging about diseases is boring and sad but I need to remember these things so here we are

I haven’t been reading much. Well, I’m still reading a little, but I’m so preoccupied that in my off time I just veg out and either watch YouTube or TikTok. Still, I’ve gotten through Dungeon Crawler Carl and am currently working through the second book in the series, Carl’s Doomsday Scenario. I’m doing the print version and the audiobook (which is interestingly done).

The series is fine. I like the relative mindlessness of it. Blowing up goblins and punching monsters so hard they explode. There are some unique aspects to the plot structure that are worth examining on a serious level — I feel like the arc of the story is built to be understood from a macroscopic lens; characters will make more sense the more books you get into the story. It’s as if the author planned on writing hundreds of thousands of words and just thought, “We’ll get to it eventually.”

As a writer, I’m used to doing this stuff quickly — I’m borderline minimalist. “Get to it!” that’s my motto. Or, as Vonnegut puts it, “Start as close to the end as possible.” Don’t waste words; your readers’ time is valuable and you should use it well. Reading Carl reminds me how flexible these rules are, because there’s a lot of stuff I don’t get or simply wouldn’t do.

It’s unfathomable to me that we don’t have more information about Carl’s ex-girlfriend yet, even though you know she’s going to make an appearance (or be brought back up somehow.)

I’m also not a fan of giving readers actual numbers for strength and intelligence. This book will give each character a level and stats, all of which are explicitly told to readers. Is this why they’re calling it “LitRPG?” (Horrible, horrible name IMO. And maybe, overall, just a bad idea.)

Increases in ability should be shown through action not spreadsheets. The spreadsheets were only ever created for RPGs like D&D where you couldn’t easily show strength or intelligence through action. In a narrative, though, all we have is time to show how characters act. That’s the whole point of a story.

I will never read a sentence like, “My strength was at 30 so I was confident I could win the fight,” and think, “That’s some good writing!”

I know, I know, not everything needs to be literary. Besides my gripes at the LitRPG genre in general, Dungeon Crawler Carl has been fun so far.

Anywho.

My dad has a feeding tube installed in his stomach and is out of the hospital, but his condition doesn’t seem to be…improving, or at least not improving rapidly. While he’s glad to be home, he really doesn’t have a lot of energy. I don’t know if that’s from the cancer or if it’s from weeks of not being able to swallow due to the tumor in his esophagus (which is growing rapidly), but it isn’t a good sign.

Sarah, my brother, and I went down to visit yesterday. Dad was able to get up and move around, but not much. He can’t swallow anything at all and chews on ice like they have you do in the hospital. His headaches are getting bad. He has a big red bottle of hydrocodone you can inject in his feeding tube.

Radiation treatments start this Thursday and will continue for most of April. Chemo will start after that, depending on how the radiation goes.

A “home run” at this point isn’t a cure; a home run is shrinking the tumor in dad’s throat enough that he can swallow food. Not only will that make his quality of life much better, but being able to get more nutrition will be an added bonus. Dad loves eating and I hate thought of him missing out on food he enjoys in favor of the flavorless goop that goes right into his belly.

Time marches forward.

School continues. The ACTs are tomorrow and I get to proctor.

Sarcastic yay.